Sillhouette of person in front of amber background doing standing splits with ground leg (left leg) hyperextended.
Sillhouette of person in front of amber background doing standing splits with ground leg (left leg) hyperextended.

Those who know us may know us as being extra bendy. Party tricks and all.

We’re not just extra bendy, though.

Hypermobile Ehlers-Danlos Syndrome (hEDS; or EDS type III) is a rare, genetic connective tissue disorder and 1 of the 13 types of Ehlers-Danlos Syndrome (EDS), which — being a connective tissue disorder — can cause us zebras (as we and others with rare diseases are also known) to have issues in all different parts of our bodies and organs at any points in our lives. It’s much more than “just” our joints or “just” being bendy.

But often, even…

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